Unless you don’t own a television, aren’t on social media (or the Internet) or perhaps live under a rock, chances are that you’re aware of the hot topic of health care. As a cancer survivor, it’s a topic dear to my heart as I’m most likely affected, as well as more than 16 million other survivors, by any changes to the current law. And that’s just cancer survivors. Add in millions of others affected by different pre-existing condition circumstances and health issues, seniors, and others, and, well, it’s a major topic. Many people are turning their heads because they don’t like politics. But this topic isn’t about politics. It’s about taking care of people.
Politics has been a bit of an interest for me since I was young. I loved my high school government class, was elected to our student senate and even got to serve as mayor of my hometown for a day! In college, my interests waffled between being a travel writer, communications director/press secretary for a politician or lobbying firm, or running for office myself. When I was diagnosed with bone cancer my senior year in college, my interests turned to healthcare and cancer advocacy, whether as a career or volunteer efforts.
Last year, I had the great opportunity to attend the One Voice Against Cancer Lobby Day in Washington, DC as a LIVESTRONG advocate (read about that awesome experience here). I’m honored, flattered and thrilled to share that I will again attend OVAC in June with representatives from many organizations, including LIVESTRONG, American Cancer Society Cancer Action Network, Susan G. Koman, Sarcoma Foundation of America and many others. I’m excited to be able to meet with my congressional representatives and their staff to discuss cancer and healthcare issues. It’s critical to keep cancer as a healthcare priority, ensuring coverage for people with cancer and funding for screenings, research, treatment advances, survivorship care and more. I’m also excited to once again come together with the other advocates who are passionate, kind, intelligent and dedicated people. I am a better person when I leave these gatherings, having engaged with such inspiring people.
I’m always a little fascinated when people ask why I volunteer so much and wonder how I
can enjoy advocating on tough issues. Sure, I admit it can be mentally and emotionally draining at times. Not everyone I meet has a happy ending, not all issue outcomes swing the way we want. But I am never alone, for great people stand beside me all the time. And I believe we can make a greater difference if we work together for change. It takes one person to make a difference in someone’s life, and one person to make a change and start a movement that could positively impact someone. I’m alive and able so figure why shouldn’t I be that one person?
I became even more determined to be a voice for cancer survivors when my dad was diagnosed and then died from the disease. Once during my cancer treatment, I rested on the couch as my dad sat beside me, holding my hand. Then he said he prayed every day that he could take my cancer from me. I got so mad at him for that and made him promise, even pinky-swear, that he would never do that again. As much as cancer sucked and unnerved me, I would never want anyone to take that burden. Less than three months after that conversation, I was told my tests were coming back cancer-free. And my dad was diagnosed with late stage multiple myeloma. It devastated me. And deep down, survivor’s guilt bloomed. Yes, I know my dad didn’t have the power to magically take my cancer, yet that doesn’t stop those moments from being laser-cut into my brain and replaying every so often. It was another motivation to become active in cancer advocacy and policy. Because if he could be willing to stand up for me, then I could certainly continue his fight, my family’s fight, and stand up for others touched by this terrible disease.
I recognized years ago, as a young adult cancer patient facing many serious issues and decisions, that I had the chance to live beyond my cancer and save my leg, because someone else once had the courage to stand up for others. A researcher had the opportunity to develop new cancer drugs. Surgeons had the ideas to test cadaver bones, then titanium rods to try to prevent amputations. My dad was told he had maybe three moths time when he was first diagnosed. Thanks to a wonderful oncology team, his stubbornness and zest for life, and new treatments and drugs, he lived six years. My family had more time with my dad because someone else stood up in the past to push for change. I am committed to pushing for more research for cancer drugs and treatment so another daughter can get more time with her dad. I realized so many years ago that I wanted to be one of the people who held tight to the baton as it was passed and help make a difference in others’ lives.
Consider these healthcare facts:
More than 16 million people are cancer survivors in the United States. It’s expected to increase to more than 20 million by 2026.
Cancer is the second most common cause of death in the U.S., exceeded only by heart disease. This means 1 of every 4 deaths is from cancer.
It is estimated that 41 out of 100 American men and 38 out of 100 American women will develop cancer during their lifetime.
More than 52 million Americans had a pre-existing condition in 2015, meaning they would be at risk in obtaining health insurance coverage without this protection in the healthcare bill.
More than 1.7 million new cancer cases are expected to occur and approximately 600,000 cancer deaths are projected in 2017.
117 million Americans have a chronic condition.
Preventive health screenings have helped lower rates of certain cancers, including colon, rectal, cervical and breast.
When I read this facts, I know that our work isn’t done. Far from it. We’ve made great advances in treatment and survival rates, but when people are still being diagnosed and dying from the disease, then we keep working. These people need health insurance, access to care and preventive screenings. I encourage you to get involved….call your representative to share your thoughts on the proposed new healthcare bill, more funding for health screenings, access to care and whatever else is important to you. Let’s work together to make a difference.
Need more tips for being an advocate for others? Read my previous blog post.